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Ripon teen battles one in a million condition

Jordan

2:12pm 19th September 2017

After 15 surgeries, 17 year old Jordan Teodori-Faith from Ripon, made the brave decision to have his own leg amputated.

He decided to undergo surgery in July after suffering from Proteus Syndrome.

Proteus Syndrome is a rare genetic mutation characterised by the overgrowth of bones, skin and other tissues.

It affects less than one in a million people worldwide.

Organs and tissues affected by the disease grow out of proportion to the rest of the body and this is what happened to Jordan's leg.

It overgrew and made it extremely painful for him to keep mobile.

A JustGiving page has been created to help Jordan who is fundraising for a state of the art prosthetic leg.

Jordan's supportive mum Emma Faith said: "Proteus took away Jordan's ability to walk unaided by the age of four; it has caused many other medical difficulties, one being a major spinal deformity resulting in two 10 hour surgeries to correct it and a full year of intense and painful rehabilitation. The other predominantly affecting his left leg.

Jordan and Emma

""We believe that by sharing Jordan's story around the world and hopefully reaching 37,500 people and asking each one to donate just £2.00 Jordan will reach his target.

"We also hope to help raise awareness of the condition because most people have never heard of it."

To find out more about Jordan and his journey, click here.

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