Ripon teen battles one in a million condition

Jordan

2:12pm 19th September 2017

After 15 surgeries, 17 year old Jordan Teodori-Faith from Ripon, made the brave decision to have his own leg amputated.

He decided to undergo surgery in July after suffering from Proteus Syndrome.

Proteus Syndrome is a rare genetic mutation characterised by the overgrowth of bones, skin and other tissues.

It affects less than one in a million people worldwide.

Organs and tissues affected by the disease grow out of proportion to the rest of the body and this is what happened to Jordan's leg.

It overgrew and made it extremely painful for him to keep mobile.

A JustGiving page has been created to help Jordan who is fundraising for a state of the art prosthetic leg.

Jordan's supportive mum Emma Faith said: "Proteus took away Jordan's ability to walk unaided by the age of four; it has caused many other medical difficulties, one being a major spinal deformity resulting in two 10 hour surgeries to correct it and a full year of intense and painful rehabilitation. The other predominantly affecting his left leg.

Jordan and Emma

""We believe that by sharing Jordan's story around the world and hopefully reaching 37,500 people and asking each one to donate just £2.00 Jordan will reach his target.

"We also hope to help raise awareness of the condition because most people have never heard of it."

To find out more about Jordan and his journey, click here.

Share This Story

Submit this page to redditDelicious
Suggested articles
A police car on Coltherholme road Ripon where a 14 year old was hit by a car

Young teen remains critically ill following Ripon car crash

Police are issuing a further appeal after Monday's crash.

Highways England snow plough

Yorkshire's motorists urged to drive to the conditions

It comes as the Met Office issues a yellow warning for ice.

Most read
A police car on Coltherholme road Ripon where a 14 year old was hit by a car

Teenager critical after being hit by a car in Ripon

The 14-year-old was on his way to school.

Stray FM Local News for Harrogate, Skipton, Craven and Wharfedale

Cyclist hurt in serious collision near Knaresborough

It happened at the St James Retail Park roundabout.

Newer article

North Yorkshire schools get major facelift

Harrogate, Craven & Wharfedale: Find out how much has been spent on improving school buildings across the county.

Older article
Top articles

High hopes for Skipton to Colne rail link

Harrogate, Craven & Wharfedale: The Prime Minister says that proposals to reopen the railway line will be looked at "very seriously".

Two dead and four injured in car crash in Haydock, Merseyside

National: A man and a woman have died and two children are in a serious condition in hospital following a car crash in Merseyside.

Taxi driver arrested over British diplomat Rebecca Dykes murder

World: A taxi driver has been arrested over the murder of British diplomat Rebecca Dykes in Lebanon, police in Beirut have said.

Greater Manchester Police investigating hate crime against Man City winger Raheem Sterling

Sport: Greater Manchester Police are investigating an alleged racially aggravated assault against Manchester City winger Raheem Sterling.

Ashley Jensen 'devastated' after husband Terence Beesley's sudden death

Showbiz: Actress Ashley Jensen says she has been left "devastated" after the sudden death of her husband.

LISTEN: Long-serving Grassington firefighter calls it a day

Harrogate, Craven & Wharfedale: Watch Manager Andrew Howick has retired after 22 years of service.

Harrogate charity help taxi drivers improve disability awareness

Harrogate, Craven & Wharfedale: It's held the first of a series of training sessions for the district’s 500 taxi drivers.

Mumblers explore the Ilkley Teepees

Christmas: Marshmallow roasting, a grotto, and presents from Father Christmas!

Mumblers explore the Ilkley Teepees

Christmas: Marshmallow roasting, a grotto, and presents from Father Christmas!

Craven and Wharfedale mums-to-be encouraged to have flu jab

Harrogate, Craven & Wharfedale: Figures show that around half of pregnant women weren't vaccinated last year.

Delicious Dinner At Damn Yankee

Business: James Stanley from Stray FM tests out the newly-owned Damn Yankee

Craven and Wharfedale mums-to-be encouraged to have flu jab

Harrogate, Craven & Wharfedale: Figures show that around half of pregnant women weren't vaccinated last year.

Craven asked to support Aireville Park play area

Harrogate, Craven & Wharfedale: Businesses and residents have the chance to sponsor a bench or even donate a tree for a loved one.

Top Party Dresses for the Festive Season

Opinion: Local Blogger, the Harrogate Girl, picks the best frocks, gowns and outfits for the big Christmas parties of 2017.

The Yorkshire floods: one year on

Special Reports: People affected by last year's downpours describe what has happened in the last 12 months

Tour de Yorkshire: LIVE BLOG

Harrogate, Craven & Wharfedale: Follow all the action as 2017's Tour de Yorkshire hits the Stray FM area.

Tour de Yorkshire host venues confirmed

Harrogate, Craven & Wharfedale: There'll be no re-run of this year's memorable Tour de France stage finish in Harrogate.

Christmas lights switch-ons near you

Harrogate, Craven & Wharfedale: Find out where you can see the festive illuminations being turned on and when across Harrogate, Craven and Wharfedale.

Poll

Have you finished your Christmas Shopping?